Newsletter Archive

Breathe Easy Bulletin: Past Editions

View past editions of our newsletter by following the links.

New Website
Supplemental Oxygen Access Reform (SOAR) Act Update
Research, including an iBEST study and a multicentre EMBARC registry study
Coming Soon – Liquid oxygen in New York City.
Webinars: Recording from NTM & Bronchiectasis patient conference and registration open for Highlights from the Respiratory Tract Infection Forum
Upcoming events

Supplemental Oxygen Access Reform (SOAR) Act Update
Research on the prevalence and distribution of treatable traits (TTs) in bronchiectasis
Webinars update
Bronchiectasis Patient Conference announced
End-of-year matching donations
OxiWear Pulse Oximeter coupon code

Supplemental Oxygen Access Reform (SOAR) Act Update
A new portable oxygen concentrator (POC) may be on the horizon
Webinar: Portable Oxygen Concentrator (POC) Basics and How to Identify “noncentrators
End-of-year matching donations
OxiWear Pulse Oximeter coupon code

Research on feasibility of machine learning analysis for PCD and results of a clinical trial for patients with bronchiectasis
Webinars: Portable Oxygen Concentrator (POC) Basics and How to Identify “noncentrators and Highlights from the North American Bronchiectasis and NTM Conference
Bronchiectasis patient resources from the European Respiratory Society (ERS)
2nd North American Bronchiectasis Conference
Supplemental Oxygen Access Reform (SOAR) Act Update

Research: European Respiratory Society Clinical Practice Guideline for the Management of Adult Bronchiectasis and European Respiratory Society and American Thoracic Society guidelines for the diagnosis of Primary Ciliary Dyskinesia
Webinars: Portable Oxygen Concentrator (POC) Basics and How to Identify “noncentrators and Highlights from the North American Bronchiectasis and NTM Conference
A Bronchiectasis survey
2nd North American Bronchiectasis Conference, BEAT-PCD Patient Conference and Recordings from National Jewish Health’s NTM & Bronchiectasis Patient & Family Conference

Supplemental Oxygen Access Reform (SOAR) Act update.
Research: FDA approves first medication for non-Cystic Fibrosis Bronchiectasis; Newborn screenings suggested for PCD gene variant RSPH4A
Webinars: PCD on the Move Highlights, Highlights from European Respiratory Society Conference & BEAT PCD Scientific Meeting, Recording DPP-1 Inhibitors
A bronchiectasis survey
2nd North American Bronchiectasis Conference
World Oxygen Day is October 2nd

Supplemental Oxygen Access Reform (SOAR) Act update.
Webinar: Dipeptidyl Peptidase 1 (DPP1) Inhibitors for Bronchiectasis – Overview and Q & A
A bronchiectasis survey
2nd North American Bronchiectasis Conference
New NTM Men’s Support Group
Flying with oxygen update

World Bronchiectasis Day information, events and resources.
Supplemental Oxygen Access Reform (SOAR) Act update.
Research – Phages in CF patients with multi-drug resistant pseudomonas | Supplemental Oxygen- A Person Centered Approach | Jama Patient Guide for Supplemental Oxygen
Webinar: Recording for June 4th’s Bronchiectasis Diagnostics webinar is now online.
Conferences: Patient conference opportunites | Recap of American Thoracic Society’s conference & NTM and Bronchiectasis patient conference.
Update on flying with POCs and new blog on traveling with POCs.

Webinar: Register for Bronchiectasis Diagnostics webinar, recording from Updates from European Bronchiectasis Workshop & Forum on Respiratory Tract Infections
Flying with POCs – more issues and new resources.
Bronchiectasis – update on FDA review of brensocatib.
Conferences: NTM and Bronchiectasis patient conference.
Supplemental Oxygen Access Reform (SOAR) Act update.

A link to our 10th Anniversary Impact Report.
Registration link and information for our Running On Air 10th Anniversary virtual race.
Information on the Supplemental Oxygen Access Reform (SOAR) Act.
A link to adjust your email preferences.
Kick off of our end-of-year fundraising campaign.